Harriet had been referred to see the Gastrostomy surgeon at the Queen Medical Centre in Nottingham, as her consultants were concerned that the nasal gastric tube that was feeding Harriet feed and medicines may start to cause problems with her breathing.
The appointment came through within a few months and although we were both very anxious about going to see the surgeon, we knew that it was something we had to do in order to find out whether this would help Harriet in the long term.
We arrived at the QMC, just before 10.00 am and made our way to the children`s outpatient area at the hospital, the nurse booked Harriet in and then took her measurements and weight.
After a few minutes we were called into see the Mr. Singh, who was the consultant surgeon for this type of procedure. He asked how Harriet was and whether she had developed any further problems.
We told Mr. Singh that although Harriet was very complex and had ongoing neurological problems, that she was currently stable and happy within herself.